B.C. boy denied $19,000-per-month drug to ease ‘crippling pain’ for 3rd time

Sooke mom Jillian Lanthier says son Landen Alexa has been forgotten about by Premier John Horgan

After months of trying to find funding for medicine that could change six-year-old Landen Alexa’s life, he was denied coverage from B.C. Pharmacare for a third time.

“It’s just me fighting right now. The media is over it, and I have been brushed off by [Premier] John Horgan and [Health Minister] Adrian Dix,” said Jillian Lanthier, Landen’s mother. “They won’t acknowledge me as a human being.”

Last June, Landen, a Sooke resident, was diagnosed with systemic juvenile idiopathic arthritis, more commonly known as SJIA, a disease that causes his body to attack itself, leaving him with crippling muscle and joint pain and with virtually no immune system.

The disease is so severe, even a common head cold can be potentially fatal for him.

RELATED: Six-year-old Sooke boy needs $19,000 a month to treat rare form of arthritis

The medicine Landen is on now is no longer effective, and the only option for treatment is a drug called Ilarus, which is going to cost Lanthier $19,000 a month. It’s not covered by B.C. Pharmacare.

Landed spent Christmas Eve in hospital, screaming in pain from the disease, and yesterday began chemo to help manage the pain.

“They almost had to cut his shirt off because he had no mobility in his arms,” Lanthier said.

She explained that Landen has good days and bad days, but lately has been consistently coming home by noon in crippling pain.

“The chemo will hopefully help a bit, but I just look at it as ‘Here you go Landen, another Band-Aid’,” Lanthier said.

“I’m feeling very angry and sad.”

In response to Landen’s battle, a petition has been started by the Cassie and Friends Society for Chieldren with Juvenile Arthitis and other rehuematic diseases. So far, it’s received more than 8,000 signatures.

Lanthier added that she is frustrated because she has watched medicine, such as the abortion pill, recently get covered by the B.C. Health Ministry, but can’t get a response from anyone to find funding for Landen.

“It’s great that those types of things are free for everyone in the province now, but I am sitting here and my son is fighting to live a normal life, and no one will even acknowledge us,” she said.

There are only approximately 10 children in B.C. who are battling the same disease as Landen, and the medicine could greatly improve his quality of life, helping with pain and allowing him to make fewer hospital visits.

“I’m not giving up, and I’m not taking no for a third time as their final answer,” said Lanthier. “I have a lot more fight left in me, I just don’t know which avenue to take yet.”

Horgan, who is also MLA for the Sooke region, did not return calls for comment.



editor@sookenewsmirror.com

Like us on Facebook and follow us on Twitter

Just Posted

#GetHired at the Black Press Extreme Education and Career Fair today

‘We contact companies that we know are either looking to hire’

Letter: Langley Township could be truly innovative in Williams neighbourhood

A local letter writer calls on local government to plan for the future.

Looking Back: The potato club shuts down!

Our community’s history through the files of the Langley Advance

Our View: Shopping mix in Langley tough

As Langley grows, we need to consider what kind of commercial development we want.

VIDEO: Take a tour of the new $55.2-million Salish Secondary in North Clayton

Hundreds came out for the public open house on Wednesday night

Canadian musician duets with ancestral Indigenous voices on debut album

Toronto’s Jeremy Dutcher has mixed his operatic tenor with his Wolastoq First Nation roots

WATCH: Oldest longhouse in the Fraser Valley to be rebuilt in Chilliwack

Longhouse fundraising gala at Tzeachten Hall, May 5 puts spotlight on Indigenous art

COLUMN: Stanley Cup playoff second-round predictions

Sidney Crosby and the Penguins continue their quest for their third straight Stanley Cup

B.C. seeks court ruling on new pipeline regulations

Province wants to require permits for any new bitumen transport

LIVE: TSB findings on plane crash that killed former Alberta Premier Jim Prentice

The TSB will announce its findings and the Capital News will follow.

Former child watchdog to head UBC centre on residential schools

Mary Ellen Turpel-Lafond to lead university’s Indian Residential School History and Dialogue Centre

Man dead after possible attack near Vancouver casino

A 38-year-old man with ‘serious injures’ was rushed to hospital but died in surgery

5 to start your day

3-alarm fire guts East Vancouver print shop, prison escapee back in custody and more

Toronto sports fans come together in wake of van attack

Police probe Toronto van attack as details emerge

Most Read